Primary Care Phenoscreening Study

The Primary Care Phenoscreening Study is led by Catherine Burrows, PhD, LP, in the Department of Pediatrics.

This study is looking at a population of children between 17 and 25 months of age – a time when some children begin to show neurodevelopmental differences. Identifying differences as early as possible so that these children can receive intervention services promptly is very important for these families. Early intervention has been shown to improve outcomes. In order to improve early detection, we need to characterize behavioral development in a lot of children, including typically developing children, with a new early detection approach.

The primary purpose of this study is to improve community-based screening of early neurodevelopmental differences in females to facilitate their access to early intervention. The current project focuses on testing whether screening measures are equally effective at identifying symptoms in males and females. We are investigating a new approach that we hope will ultimately improve early identification of neurodevelopmental differences in the future. The overarching goal is to implement this new early detection approach in primary care settings, which is why we are partnering with Children’s Minnesota.

Who Can Participate in the Study?

We are looking to recruit 500 families with a toddler between 17 and 25 months of age.

What Will You Be Doing?

For the initial phase of the study, families will complete a demographics form and accompanying online questionnaires about their child’s behavior and development.

For the follow-up phase of the study, 50 families will be invited to the Masonic Institute for the Developing Brain (MIDB) at the University of Minnesota (UMN) to complete direct clinical and behavioral assessments with their children.

Compensation For Your Time

Families will be reimbursed $20 for the initial survey phase and up to $150 for the follow-up assessment phase.

Interested in Learning More?

If you are interested in participating or would like to learn more, please email our team at